Ella decided to slightly modify the plans we had for the weekend. According to our plans we were to be going on a hiking trip in the White Mountains. A first for Ella. We would stay in a hut managed by the Appalachian Mountain Club. Ella’s plan was a little different, she would get a fever the night before we leave, a 104 degree fever (40 degrees Celsius), we would then spend half the night in the emergency room and cancel our hiking trip. Whose plan do you think got implemented? Actually we compromised. I stayed home with Ella and everyone else (Michelle, Gaul, Ruthie, Harel and Ofer) went on the hike. I got to spend the whole weekend with Ella and only with her (and a fever). The weather was miserable so even if she felt better there really wasn’t anywhere to go. It was actually a lot of fun. The first day we just relaxed because I wanted to let her rest and get over the fever.
At the emergency room they couldn’t tell us anything conclusive. They wanted to rule out the possibility of her Shunt being infected, and try to find some other source of infection to explain the fever. They couldn’t. The second day we did a little more. Some of the exercises she is used to. Her progress, as usual, is very slow but consistent. She is moving ahead in her ability to express herself, feed herself and stand. Tiny steps. But steps all the same. Ella is tolerating the stander better and for longer durations. She will also agree to lay on her tummy propped up on her elbows if you put on a Barney movie. She responds more with imitating words you say and sometimes they come out similar to the ones you said…